Patient-Reported Outcome Measures (PROMs) metadata
Overview
Beginning in 2018 with a pilot program in Ontario and a partnership with the Organisation for Economic Co-operation and Development (OECD) in leading an international working group that aims to provide comparable reporting among participating countries, ºìÁì½í¹Ï±¨collects data on hip and knee arthroplasty patient-reported outcome measures (PROMs).
Data elements collected for the program in Ontario are listed in CIHI’s Patient-Reported Outcome Measures Data Collection Manual: Hip and Knee Arthroplasty, 2021 (PDF) and data elements collected for the partnership with OECD are listed in the OECD Patient-Reported Indicator Surveys (PaRIS) Initiative: PROMs for Hip and Knee Replacement Surgery — International Data Collection Guidelines (PDF). This includes the capture of information from licensed survey tools (e.g., , ). These surveys are repeated longitudinally pre- and post-surgery to track outcomes from a patient’s perspective over time and to monitor gains in improvement.
Find out more about CIHI’s PROMs Program, including data collection standards and reports.
Statement of purpose (PHI)
The acquisition and use of personal health information (PHI) in relation to this data source supports the following purposes:
- To facilitate accurate identification of a patient to enable linkage of a patient’s surgery data, as well as for longitudinal follow-up; and
- To analyze the effects of specific identifiers, such as age at the time of surgery.
All data collected will be used to further the objectives of the PROMs Program, which are as follows:
- Demonstrate the value of collecting PROMs data beginning with hip and knee arthroplasty;
- Launch a standardized approach to the collection of PROMs data;
- Promote alignment with national standards to support comparable reporting;
- Support the OECD patient-reported indicators program of work related to PROMs for hip and knee arthroplasty;
- Develop comparative reports for health system monitoring;
- Provide facility-level reports to own data providers;
- Improve communications between providers and patients, informing treatment decisions and setting appropriate patient expectations on outcomes;
- Complement traditional, clinical outcomes, cost and patient experience data to enable a more comprehensive understanding of their inter-relationships; and
- Support the evaluation of performance and effectiveness of care.
Privacy impact assessment
Privacy impact assessments (PIAs) evaluate and address the privacy impacts of programs and systems.
Go to the Privacy and security page to view the PIA, which contains further information about the purposes, data elements and data sources for this data holding.
Contact us
For further information, please email
How to cite:
Canadian Institute for ºìÁì½í¹Ï±¨ Information. Patient-Reported Outcome Measures (PROMs) metadata. Accessed December 21, 2024.
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