CIHI’s PROMs Program
A common approach to collecting and reporting patient-reported outcome measures (PROMs) data provides more comparable data — regionally, nationally and internationally — with which to drive health system enhancements. In response to stakeholder interest, ºìÁì½í¹Ï±¨works with a broad range of stakeholders to provide leadership to advance standardized approaches to PROMs in Canada.
In 2015, ºìÁì½í¹Ï±¨hosted a pan-Canadian PROMs Forum, which launched CIHI’s PROMs Program to support the development of PROMs data collection standards and reporting in priority areas. ºìÁì½í¹Ï±¨developed a PROMs focus on hip and knee replacement surgeries.
CIHI’s PROMs Program helped to do the following: identify priority clinical areas and topics for the routine collection and reporting of PROMs data in Canada; support the development of PROMs data collection standards and tools; convene stakeholders and facilitate collaboration across jurisdictions; advance a common approach to PROMs data collection and reporting; and promote the ongoing and routine use of PROMs and comparative reporting of PROMs data.
Additional information is available in CIHI’s PROMs Background Document (PDF).
As of April 1, 2025, ºìÁì½í¹Ï±¨has made the decision to change its involvement related to the PROMs Program. ºìÁì½í¹Ï±¨has thoughtfully evaluated programs and services in light of the evolving information needs of health systems. ºìÁì½í¹Ï±¨will focus on existing commitments in PROMs on hip and knee replacement surgeries, and it will step back from PROMs work outside of this clinical area. ºìÁì½í¹Ï±¨will also continue to support sub-licensing of PROMs tools, including the EQ-5D-5L, Oxford Hip Score (OHS) and Oxford Knee Score (OKS).
ºìÁì½í¹Ï±¨values the collaborative achievements accomplished with partners, and it recognizes the importance of PROMs data to providing valuable information for supporting patient-centred health care.
Collaboration and partnerships
The use of PROMs in Canada continues to evolve. Expanding the collection of PROMs to include more patients and more provinces and territories is needed to enhance the utility of these measures for health care planners and clinicians.
To gain insight into the application of PROMs in Canada, ºìÁì½í¹Ï±¨conducted an environmental scan on the use and value of generic PROMs and how they are being implemented and planned in Canadian jurisdictions. The summary findings and recommendations from this work are available upon request.
If you have questions or would like to learn more, email proms@cihi.ca.
OECD Patient-Reported Indicator Surveys (PaRIS) initiative
The Organisation for Economic Co-operation and Development (OECD) Patient-Reported Indicator Surveys (PaRIS) initiative identified the need for PROMs reporting to better monitor health system performance and to drive continuous improvement.
The OECD established the international Working Group on Patient-Reported Indicators for Hip and Knee Replacement Surgery to build consensus on common approaches for PROMs collection and reporting. The working group’s priorities have included developing indicators for comparable reporting, developing international data collection standards, and reporting internationally comparative PROMs data for hip and knee replacement surgery.
Members of the group have included patient representatives, clinicians, national arthroplasty registries, the International Society of Arthroplasty Registries (ISAR), experts in PROMs measurement and government representatives from several OECD member countries. From 2017 to 2024, ºìÁì½í¹Ï±¨co-led this working group, and it partnered with the OECD to release international reporting of hip and knee PROMs data in 2019, 2021, 2023 and 2025.
Featured materials
PROMs Background Document
An overview of PROMs and some examples of PROMs use nationally and internationally.
International Data Collection Guidelines
International guidelines on PROMs data collection in hip and knee replacement procedures in OECD member and partner countries.
OECD’s ºìÁì½í¹Ï±¨ at a Glance
Key indicators of health system performance across OECD member and partner countries and reporting on PROMs data in acute care for hip and knee replacements.
International assessment of the use and results of PROMs for hip and knee replacements
Findings of the OECD working group on hip and knee replacement surgery.
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How to cite:
Canadian Institute for ºìÁì½í¹Ï±¨ Information. CIHI’s PROMs Program. Accessed April 12, 2025.
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